Over the past 10 years my favourite experiences have been focused around the SMA community. From playdates, conferences, bowling, fundraisers, summer camps, to one-on-one conversations. I have learned so much from other families and people with SMA, and have been so happy to share our story and advice to help others. From accessibility renovation idea, …
Author Archives: Sarah Bartlett
Hello? Is it me you’re looking for?
This is sponsored post on behalf of mySMAteam. Anyone else missing people? ????? It’s been a loooooooong 9 months, so I recently signed up for mySMAteam – it’s a social network for those living with and caring for someone with Spinal Muscular Atrophy. I’m looking forward to checking it out and meeting new people! It …
Happy Valentine’s Day!
You know how much we love ANY holiday! Any excuse to decorate up the house and do a little photo shoot! Happy Valentine’s Day – Love The Bartlett’s!
Sickkids for RSV
After our amazing trip to Houston for the holidays we came home to Toronto determined to stay healthy. With Stella’s new bed and other gear we also resolved to keep her home if she did pick something up. Sure enough within a week a flu had hit the house. With the help of our amazing nurses …
Stella’s Umbrella… ella, ella, eh, eh?
We have been getting a lot of requests for information on Stella’s umbrella so I thought I would do a post to share what we have done. If you make modifications, additions or find cheaper hardware please share in the comments section. Here is a photo of all the parts [including a Spring Clip Clamp …
Stella’s Chariot Awaits!
Brought home an accessible van for Stella today. Its used and nothing fancy but it is going to make life sooooo much easier. We will have to take it in to get an entertainment system installed for the kids but other than that it is amazing. Get ready for blog rants on wheelchair parking …
Team Stella Rebecca Run 2013
A heartfelt thanks to all those who braved the heat, humidity and long drive to make it to the Rebecca Run today in Newmarket. Although Stella couldn’t be there we still had an amazing turn out and raised more money for SMA research in Canada. I think some of the runners for Team Stella …
Disneyland – Families of SMA Conference
Finally getting down to writing about our amazing trip to Disney… Sarah, Stella, Oliver and I flew down to California to meet up with my sister Holly and her four kids to attend the annual Families of SMA conference and of course do that disney thing. The thought of flying down with two kids …
The Magic of Disney
A Disney cast member named Wayne made a very special delivery to our room this evening. Wayne, when you read this you have to contact us so we can thank you properly. [AND our photos didn’t turn out 🙁 ] We will fill you in with the details later but lets just say tomorrow is …
Stella’s Robot Arms! – Part Two
If you haven’t already, you should read Part One. We had our first accident. Stella has her WREX connected to her power chair. This makes sense for many reasons but it poses a couple of issues: The first is that she isn’t always in her power chair – she does most of her “playing” etc …