On June 30th around noon we got the fantastic news that Health Canada has approved Spinraza for treatment of all types of SMA. This is such great news, and we were thrilled with the full approval across all types as this has been a problem in other countries in regards to access. To read the full press release click here.
As we were at the SMA Conference we had a toast of champagne with some of the other Canadian families.
There is still a significant number of steps to proceed through before any patients begin to get dosed. We are told it could be 1-2 years still. So mixed emotions of happiness/relief and continued anxiety/frustration. But a step in the right direction. Below is a flowchart of the process to follow.