Marilyn Denis Show Update

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This is why we do what we do. To raise awareness of Sma. To raise funds for research. To find a cure or treatment for our girl.

A simple cold on Sunday turns into plummeting oxygen concentration, a tachy heart rate, fever and vomiting.

Unfortunately that means that Stella will miss the Marilyn Denis show tomorrow. The taped segments will still air as scheduled. We are hoping either Myles or I can attend.

We can never really plan for things and have learned with Sma to roll with these changes, but we are so disappointed.

We are so grateful for the exposure the show will bring to Sma and are thrilled with the support we have received from our friends and family.

Thanks for the well wishes and we will try to keep you posted.

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