Day One FSMA Conference…..

We are in information overload already but we are learning tons and already meeting specialists as well as families that have years of experience helping special little kids like ours and it is confirming that we are doing the right things with her and that there are lots of options for preventative care. Plus there …

Trip to SickKids Hospital Pulmonary Clinic [with a little bonus!]

We spent the day at SickKids Pulmonary clinic today. It was great to meet another specialist for some perspective and info on Stella’s condition and SMA in general. Learned what to look out for in Stella’s breathing and discussed getting her into a sleep study to give us a benchmark moving forward. They also did …