Home Sweet Home

So we are home and we are wiped out. We will post our thoughts on the conference in the coming days. Looking forward to connecting with all of the people we met. Don’t forget the Rebecca Run on July 9th. If you can’t come, head to the blog and click on the link to sponsor! […]

Feathers for Stella

Just sitting at the airport in Toronto waiting to catch our plane to Orlando and wanted to take a moment to thank my sister, and Diane at Hip Hop Lollipop for throwing the Feathers for Stella event, and a big thanks to all those who came out to make it such a success. It is […]

Fathers Day!

Had an amazing fathers day! Stella and I hung out in the beautiful weather, then went shopping for a couple things for our trip to florida [I’ll post on that a bit later]. Stella was in fine form, lots of smiles and giggles for me all day….. but she turned into a monster last night!! […]

Trip to SickKids Hospital Pulmonary Clinic [with a little bonus!]

We spent the day at SickKids Pulmonary clinic today. It was great to meet another specialist for some perspective and info on Stella’s condition and SMA in general. Learned what to look out for in Stella’s breathing and discussed getting her into a sleep study to give us a benchmark moving forward. They also did […]